![]() Health Care Information Collection (THCIC).National Electronic Disease Surveillance System (NEDSS). ![]() Emergency Medical Services (EMS) Licensure.Asbestos Hazard Emergency Response Act (AHERA).Food Manufacturers, Wholesalers, and Warehouses.Resources for Cancer Patients, Caregivers and Families.Cancer Resources for Health Professionals.Texas Comprehensive Cancer Control Program.Library and Information Science Program.Research, Funding, & Educational Resources.Center for Health Emergency Preparedness & Response.“We’re seeing less attention to the lingering effects of Covid, which are still here and will be for years to come. “It’s becoming largely forgotten,” she said. She said she’d like to see the federal government provide more funding both for research and to support the few clinics that do exist. It’s not a good way to provide care to patients.” “We are booked out for more than a year at this point. “We are very under-resourced and we are completely inundated with patients,” said Janna Friedly, executive director of the University of Washington Post-Covid Rehabilitation and Recovery Clinic. Despite the growing body of evidence that long Covid poses a serious and widespread health threat, the Biden administration has not done enough to provide funds for clinics or educate people about what to look for in themselves or their patients, they say. ![]() Many who treat long Covid patients say lawmakers and the White House need to do more to support patients and raise awareness about the condition, particularly as deaths from it mount. He is hopeful that the $25 million in funding for this work, which was included in the latest Senate Appropriations Committee text for the end-of-year omnibus bill, will be included in the law. The CARE for Long COVID Act, which Kaine sponsored, would, among other things, provide funding to the CDC to focus on better understanding the differences in access to diagnosis and treatment. “We pick up disparities faster and that can enable us to devise strategies to beat those disparities faster.” “We’re certainly better than we were at the start of Covid,” Kaine told POLITICO, referring to health inequities. Tim Kaine (D-Va.), who has long Covid himself and continues to experience tingling in his nerves that started when he caught Covid in March 2020, acknowledges that there are still significant barriers to accessing long Covid care, but he is optimistic that things are moving in the right direction as more is learned about the condition. It also published a report outlining federal services available for people who have long Covid. In August, the Biden administration rolled out the National Research Action Plan on Long Covid focused on better understanding how to prevent, diagnose and treat long Covid, and named health equity as a “guiding principle” in that work. While some research shows that mental health impacts how people experience disease, she said many patients are “not being properly referred or identified.” “A lot of patients are being told they are just anxious,” said Alba Azola, co-director of Johns Hopkins Post-Acute Covid-19 Team, referring to the Latino patient community she often works with. In many other instances, patients who do seek treatment are being told that what they are experiencing after their Covid-19 infection is not a problem. “They don’t have time to sit on the phone.” “My patients have to work to pay their bills,” said Ramers, who treats predominantly low-income people of color. He says throughout the pandemic the various innovations that emerged to fight Covid-19 - tests, vaccines, treatments and long Covid clinics - have always been accessible first mainly to people who have the resources to seek them out. “This is the same movie that we’ve seen over and over again,” said Christian Ramers, a doctor who treats long Covid patients at the Family Health Centers of San Diego. The relatively few patients who do get treated are overwhelmingly white and affluent enough to be able to take time off work to go to multiple appointments and spend time online finding care and support groups, doctors say. The constellation of long Covid clinics that have cropped up across the country continue to have months-long waiting lists for new patients. adults who say they’ve had Covid-19 also have long Covid symptoms, it remains prohibitively difficult for patients to get treatment for the condition, doctors say, due to low levels of awareness among doctors and patients, lack of funding for specialized clinics, and the time-consuming process of getting diagnosed and treated for a condition that has dozens of symptoms. And though a recent CDC National Center for Health Statistics survey found nearly one in five U.S. A death can only be attributed to long Covid if a patient is diagnosed with having it.
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